Patients associations

Patients’ associations have a significant role for patients living with chronic rheumatic diseases:

• Support everyone living with the impact of chronic rheumatic diseases at the start and every step of their journey
• Provide reliable and easily accessible information
• Empower all patients to have a voice and take control of their disease

Here are links to some active patients’ associations:

• Local Patients’ Associations
• Regional Patients’ Associations
• International Patients’ Associations
• GENERAL Role of the Patient In the Management of Rheumatic Disease https://www.rheumatology.org/I-Am-A/Patient-Caregiver/Health-Care-Team/Role-of-a-Patient
• GENERAL Arthritis Foundation https://www.arthritis.org/
• ANTIPHOSPHOLIPID SYNDROME APS Support UK – For people with antiphospholipid syndrome http://aps-support.org.uk/ 
• ANTIPHOSPHOLIPID SYNDROME APS Foundation of America http://www.apsfa.org/
• LUPUS Lupus Europe – Uniting people with lupus throughout Europe http://www.lupus-europe.org
• LUPUS Lupus Foundation of America http://www.lupus.org
• LUPUS Lupus Research Alliance http://www.lupusny.org
• MYOSITIS Myositis Support Group (UK) http://www.myositis.org.uk
• MYOSITIS The Myositis Association http://www.myositis.org
• OSTEOARTHRITIS OASIS (Osteo Arthritis Service Integration System) http://oasis.vch.ca
• OSTEOPOROSIS Osteo Link http://www.osteolink.org/
• OSTEOPOROSIS The National Osteoporosis Society (UK) https://nos.org.uk/
• OSTEOPOROSIS The National Osteoporosis Foundation (USA) https://www.nof.org/
• RHEUMATOID ARTHRITIS National Rheumatoid Arthritis Society https://www.nras.org.uk/
• SCLERODERMA European Directory of Patients’ Organizations – Scleroderma http://www.eu-patient.eu
• SCLERODERMA Federation of European Scleroderma Associations http://www.fesca-scleroderma.eu
• SCLERODERMA International Scleroderma Network http://www.sclero.org
• SCLERODERMA National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) http://www.niams.nih.gov/Health_Info/Scleroderma
• SCLERODERMA Scleroderma Raynaud’s UK (SRUK) https://www.sruk.co.uk/
• SCLERODERMA Scleroderma Foundation http://www.scleroderma.org
• SPONDYLOARTHRITIS Spondylitis Association of America https://spondylitis.org/
• SPONDYLOARTHRITS Ankylosing Spondylitis International Federation (ASIF) http://www.asif.rheumanet.org
• VASCULITIS Vasculitis foundations http://www.vasculitisfoundation.org/
• VASCULITIS European Vasculitis Study Group (EUVAS) http://www.vasculitis.org
• VASCULITIS Vasculitis Clinical Research Consortium http://rarediseasesnetwork.epi.usf.edu/vcrc/index.htm
• VASCULITIS Orphanet http://www.orpha.net/consor/cgi-bin/index.php